An appeal by Martynne Layton, from the Shane Project in Edmonton
Over 100,000 people in the UK have multiple sclerosis (MS), a disease of the central nervous system that damages the protective coating around the nerves which transmit messages to all parts of the body.
MS limits control of muscular and sensory activity, greatly affecting quality of life and potentially leading to death.
Our organisation was established in 2002 by our chair Norma McFarlane, whose son, Shane, was diagnosed with MS and later died. A month before losing Shane, Norma’s other son Ancel was also diagnosed with MS and continues to live with it.
The Shane Project aims to raise awareness and provide support to people living with MS, plus their families and carers. We are a local charity in Edmonton and have just two part-time members of staff – our board of trustees and chair are volunteers. We also have volunteers who support us in various ways so our services run successfully.
We enhance the quality of life of people affected by MS by providing them with access to information, advice, training, and development. We endeavour to prevent social isolation, improve wellbeing, physical health, and employment prospects.
Through all of this, it is our hope to increase the independence and improve the lifestyles of people living with MS.
Like any small charity, we rely on donations to continue our much needed services, such as seated Tai chi, monthly peer support network club, reflexology, teleconferencing to members, and inclusive cycling.
Please consider joining us as a member or supporter.